The foundation of the ASH RC is its agile data repository, the Data Hub. This technology platform, developed by our informatics partner Prometheus Research, facilitates
the exchange and repurposing of health information by aggregating and making available for inquiry complex real-world data on hematologic diseases.
For hematologic diseases, particularly for rare diseases, it is difficult to bring together a critical mass of data, as the patient populations are small and their information is stored in locations around the world. Questions about the populations, the natural history of disease at the individual patient level, practice patterns, and the quality of care are often left unanswered.
Recognizing that this limitation inhibits the pace of discovery, ASH invested in the creation of the ASH RC Data Hub to facilitate the sharing of data on hematologic conditions in support of scientific inquiry. ASH is uniquely positioned as a trusted convener to collaborate with different stakeholders to grow the data in the Data Hub and provide access to researchers and clinicians working to conquer blood diseases.