In this case study, discover how Prometheus proposed using its agile data platform, RexRegistry, to deliver a Data Hub with the following properties:
(1) Facilitate the immediate demand for an SCN2A natural history study
(2) be extensible to support additional SCN2A clinical studies at reduced marginal costs; and
(3) enable data integration and reuse across all studies and potential partners (as allowed by data use agreements and law)
(4) and adhere to all patient privacy and protection laws governed by Institutional Review Boards (IRBs) and ethics committees.
Length: 11 minutes